I want to tell you what's been happening lately with Luca. Well, the news aren't so good, because Luca has received a hard diagnostic -profound bilateral hearing loss-, practically he has never heard the voice of the loved ones; he lives, at this age in a world without sounds...
In august 2013 we got the diagnosis confirmation at ORL Hospital in Bucharest. Now the only chance he has is to receive a bilateral cochlear implant. From the moment that this diagnosis was issued we had a lot of disappointments from some people, but also hope from other extraordinary people with good heart.
The State covers the cost of the cochlear implant for one ear, but Luca needs two implants so we decided to start a fund raising because it's the only thing that we can do, because the cost of the operation is 25 000 euro, and it's the money that we can only dream of having them.
We decided to initiate this fund raising because Luca needs his operation urgently because the doctors told us that he needs the cochlear implant before the age of 4 , for better recovery, Luca is now 3 years and 3 months old.
We wish he could hear with both of his ears because that will help him a lot in his neuromotor recovery, but this will not be possible without the help of people in which we put our hopes into.
We thank you from our hearts for supporting us!
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Part I
After the diagnosis was issued we went to the same Hospital to make the prior analyzes of the cochlear implant: RMN, CT. Then they told us that Luca has to wait because the priority was healthier children, even though they knew that Luca suffers from spastic tetraparesis.
That answer hurt us very much because I think that we are all equal, we all have the right of treatment and Luca has the right to hear. After that rejection we went to Marie Curie Hospital and we where put on a waiting list for cochlear implantation at nr.33.
The State covers the cost of the cochlear implant for one ear, but Luca needs two implants so we decided to start a fund raising because it's the only thing that we can do, because the cost of the operation is 25 000 euro, and it's the money that we can only dream of having them.
We decided to initiate this fund raising because Luca needs his operation urgently because the doctors told us that he needs the cochlear implant before the age of 4 , for better recovery, Luca is now 3 years and 3 months old.
We wish he could hear with both of his ears because that will help him a lot in his neuromotor recovery, but this will not be possible without the help of people in which we put our hopes into.
We thank you from our hearts for supporting us!
_________________________________________
Part I
Although I’m not that good with
words, I would like to tell you the sad story
of our little baby boy Luca. He was born prematurely after 35 weeks, with the weight of 3,200grams( 7pounds) and
he got 9 out of 10 mark. We were very happy when we got home, knowing that he
will be a healthy boy, like the doctors told us. After 5 months we started to
question about him because he didn’t held his head normal, won’t grab toys in
his hands and won’t sit on his bottom, but the paediatrician told us is because
he was born prematurely.
When he was 7 months old we took
him to the orthopedic doctor because he held his head prone to the left. In
that moment our happiness vanished when the doctor told us that he has serious
problems and he should be seen by a neurologist. We went to the Alex. Obreja
from Bucharest hospital where he was diagnosed with central coordination
disorder, pyramidal-extrapyramidal syndrome, congenital torticollis left. We
checked in and started the recovery with vojta therapy with the guidance from
the neurologist who said that in 1 year of therapy he will recover.
After approximately two months of
therapy in Bucharest we went to 1 Mai
Oradea to consult other doctors. We didn’t knew what kind of problem he had for
sure until we went to recovery at 1 Mai Oradea and they told us that we have to
struggle and suffer with him. In august 2012 we went to Targu-Mures where he
was diagnosed with spastic tetraparesis and now our life splits between Oradea
and Targu-Mures. Although we know that he will never be perfectly healthy we
will not give up on him and we really hope that our dreams of seeing him like
every other boy will come true.
Meanwhile we have noticed that he
did not react to noises and we decided to go and check him with an O.R.L.
control (hearing test). At the clinic where we did the tests, we’ve been
told that he also suffers from profound bilateral hearing loss and that we have
to consult an O.R.L. doctor to guide us what we have to do next.
At Oradea we found some people
who went to treatment in Constanta with hyperbaric therapy and got the results.
We want to try that too but unfortunately it’s very expensive and it’s beyond
our financial status.
Even though he didn’t made big
progress, we want to try many more therapy sessions to help him sit and use his
hands to play with toys, but the costs are too much for us, that is why we ask
for your help in treating Luca.
If you can, please be there for him. Thank you.
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